Yes I Have Cancer, No I Am Not Disabled

I've been surprised by the number of people who have asked me why I'm still working fulltime. My co-workers asked me, when I returned to my job following surgery, when I was going to retire. Friends, and some family members, have asked.

I guess many people hear "cancer" and think dire consequences for the person afflicted. Or perhaps they've known people who were incapacitated by their disease, or they've seen a lot of movies where the cancer patient spends all her time in bed or in the hospital.

I wanted to go back to my job four weeks after surgery, but my surgeon wouldn't sign the work release. He said six weeks minimum.

I worked all through chemotherapy, and through radiation therapy. I missed just one and a half days of work due to feeling ill.

The Uncertainty of Cancer

Everyone knows she will die.  I don't know at what age we realize that. What mental capacity is needed to grasp the concept? Most of us, all of us probably, have trouble actually believing there will be a time when we no longer exist in our current state.

We know this intellectually, though. Just as we know the earth is constantly spinning at about 1000 miles per hour, that the sun will always rise in the east, that the Oxford comma is absolutely needed in some sentences - but for the average person, the knowledge of our mortality is safely tucked away in the back of our brains, only pulled out at the death notice of a close friend or family member, or more viciously hauled into the front of our consciousness at a funeral. Visiting a graveyard later reminds us that our bodies will at some point fail us.

For a person with a severe health diagnosis, whether it be a recurring type of  cancer or something else insidious, the specter of death is ever present, perched on a shoulder and pressing down, talons digging in sometimes to keep her aware that time is limited, lifespan is short, there may not be many tomorrows.

And yet - there might be. That's the quandary. Live as if death is sooner rather than later, or keep on the regular timetable and continue with everyday things?

Happy Anniversary, Cancer

It was a year ago tonight - Friday, July 31, 2015 - that I was told I had cancer. I didn't understand what the doctor was saying - she'd come into my small, curtained recovery stall after the D&C which was just supposed to stop excessive bleeding. I remember she said something like, "We found sarcoma. There was a lot of white stuff." I think I asked what she meant and she probably said "Cancer." She said they were moving up my planned hysterectomy from a month out to a couple of days.

At the same time, I found out later, the surgeon - gynecological oncologist Dr T - was telling my husband the same thing in the waiting room. Dr T told him it was bad, serious.

I stayed in recovery for awhile, then they moved me upstairs to a regular hospital room. I think it was in the women's wing, the labor and delivery section. This was just temporary - I think they were trying to decide when to do surgery. The nurses said I might stay overnight.

In the end they let me go home, with a surgery date of Tuesday, August 4.

Too Little Information, Too Much Information

Since my type of cancer is quite rare, not much information is available to the average person. There's some at the American Cancer Society and the NIH, but otherwise it's mostly medical studies and reports, often written in dense language that's hard to penetrate.

And that info is mostly bad, grim statistics about rarity and survival rates. Very little about the day-to-day of living with this. It's depressing to read. Some of them send me into bouts of despair.

This is not like breast cancer, with all the pink ribbons, pink t-shirts,  and pink parades. Pink support on everything, even yogurt.

Halfway Through Chemo Treatments

I did Cycle 3B on Thursday, which means I'm halfway through the six-cycle plan. On Friday the Neulasta delayed injection went off just fine.

Friday evening I began feeling confused and felt clumsy and off balance when walking. I couldn't concentrate on much and ended up watching TV on the sofa all evening, although I'd planned to try studying.

Today is Saturday, and I felt ok during the day. I went out with a friend for a couple of hours for errands and coffee, then I had other errands so I didn't get home until late afternoon. And soon fell asleep while watching TV.

The fatigue comes in waves. Tonight I'm feeling the beginning of the sore throat that will continue for a week or so.