Since my type of cancer is quite rare, not much information is available to the average person. There's some at the American Cancer Society and the NIH, but otherwise it's mostly medical studies and reports, often written in dense language that's hard to penetrate.
And that info is mostly bad, grim statistics about rarity and survival rates. Very little about the day-to-day of living with this. It's depressing to read. Some of them send me into bouts of despair.
This is not like breast cancer, with all the pink ribbons, pink t-shirts, and pink parades. Pink support on everything, even yogurt.
