Too Little Information, Too Much Information

Since my type of cancer is quite rare, not much information is available to the average person. There's some at the American Cancer Society and the NIH, but otherwise it's mostly medical studies and reports, often written in dense language that's hard to penetrate.

And that info is mostly bad, grim statistics about rarity and survival rates. Very little about the day-to-day of living with this. It's depressing to read. Some of them send me into bouts of despair.

This is not like breast cancer, with all the pink ribbons, pink t-shirts,  and pink parades. Pink support on everything, even yogurt.


I'm sometimes envious of that level of attention. So many clinical trials to find new treatments on the way to cures. So many websites bursting with info on what to expect, how to cope, and links to more resources. So so so many blogs with personal stories loads of supportive comments.

Uterine sarcoma isn't something most people even know about. It's not in the media. And the uterine seems like a squirmier topic than the breast. A more private part, not paraded about in bikinis, its a strictly reproductive organ that most men - and a lot of women - know nothing about.

That's partly why I started this blog, to help fill the gap between "You have a rare cancer with a bad prognosis" and the void.

I've found some blogs about this but most aren't active. Some have been silent for quite awhile, which leads me to believe she didn't survive.

I've tried googling my blog and it doesn't come up in searches, so I need to figure that out. I know there are some people out there looking for a personal touch on this cancer - there must be someone who would want to read my story.